The golf tournament is coming along great, we still need a few hole sponsors and some door prizes. If you would like to sponsor a hole or donate some prizes please contact us.
If you are going to get a team together please get your forms in as soon as possible.
Please click here for more information on the tournament.
Sunday, June 29, 2008
Tuesday, June 3, 2008
Update on Feet
Beth phoned today and said Haley is doing good, but her Left foot has an infection in her toe. Beth said it was not to bad and she is handling it well. She had therapy today after swimming and she is tired.
As most of you have read Haley has to have a test this summer as soon as the money is raised, the cost is $7000.00. Beth got the name of the test for me, it's called Spastic Paraplegia Work up. Basically its blood work and they are talking about doing another muscle biopsy. They have tested her for Mitochondrial DNA disorder a few years ago (it was negative) but, they want to run the test again.
As most of you have read Haley has to have a test this summer as soon as the money is raised, the cost is $7000.00. Beth got the name of the test for me, it's called Spastic Paraplegia Work up. Basically its blood work and they are talking about doing another muscle biopsy. They have tested her for Mitochondrial DNA disorder a few years ago (it was negative) but, they want to run the test again.
Sunday, June 1, 2008
We Need You!!
Interesting in lending a helping hand to Haley’s Heart?
What: Meet and Greet
When: Sunday June 22, 2008 @ 3:00
Why: To explore the options of either becoming a board member or volunteer for the local Haley’s Heart organization here in Pickens County.
Where: Rock Ridge Welcome Home Center located here in Easley at 205 Lutsen Drive.
Directions:
Take Hwy 123 through Easley.
Exit at the Hwy 8/135 exit.
At the end of the exit ramp, take a LEFT at the light. Get in the right lane. Go one block.
Take a RIGHT at the 1st light onto City Court (the CVS pharmacy). As you turn, the car wash will be on your left.
Just past the car wash, take a LEFT onto S. 5th Street.
Several hundred yards down that road, you will take a RIGHT (it is the only way you can go). You will be on Old Stagecoach Rd.
Rock Ridge is approximately 9/10ths of a mile on your LEFT. The Welcome Home Center is on your LEFT as you enter the community.
If you have any questions please contact
Daniel Clayton @ (864)367-9336 or Becky Wood @ (864) 593-4888.
What: Meet and Greet
When: Sunday June 22, 2008 @ 3:00
Why: To explore the options of either becoming a board member or volunteer for the local Haley’s Heart organization here in Pickens County.
Where: Rock Ridge Welcome Home Center located here in Easley at 205 Lutsen Drive.
Directions:
Take Hwy 123 through Easley.
Exit at the Hwy 8/135 exit.
At the end of the exit ramp, take a LEFT at the light. Get in the right lane. Go one block.
Take a RIGHT at the 1st light onto City Court (the CVS pharmacy). As you turn, the car wash will be on your left.
Just past the car wash, take a LEFT onto S. 5th Street.
Several hundred yards down that road, you will take a RIGHT (it is the only way you can go). You will be on Old Stagecoach Rd.
Rock Ridge is approximately 9/10ths of a mile on your LEFT. The Welcome Home Center is on your LEFT as you enter the community.
If you have any questions please contact
Daniel Clayton @ (864)367-9336 or Becky Wood @ (864) 593-4888.
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