Haley will be getting a heart Monitor. The doctor does not think her Hypertension and tachycardia is from the heart. Haley has been classified with Renal Disease for a while. The cardiologist wants Haley to see a Nephrologist to determine if this is coming from her kidneys and Beth is hoping for a diagnoses.
Haley looked a little pale Friday night when I was over but she was not slowing down. She was outside playing and then online with her Webkinz. I got plenty of hugs and kisses from Haley & Bri, they are both growing so fast.
Check back this week for updates on upcoming events.
Sunday, March 30, 2008
Tuesday, March 25, 2008
Haleys Beeping Heart
Haley goes to the Cardiologist Thursday 9:30 AM. They will be ordering a new heart monitor for her. I will update on this after Thursday.
They are also looking at outpatient surgery next week on her feet. Her nails are cracking a her toes are getting infection so to cut down on this they are going to do surgery. I'll update more on this as information become available.
They are also looking at outpatient surgery next week on her feet. Her nails are cracking a her toes are getting infection so to cut down on this they are going to do surgery. I'll update more on this as information become available.
Saturday, March 22, 2008
Haley Update!
I just got off the phone with Beth. Haley's heart is, as Haley puts it, "beeping" again. The doctor is supposed to call Beth on Monday.
Haley was not going to tell Beth. Beth was watching her do her homework and she would put her hand up to her neck and then back down to write several times. When Beth asked what she was doing she told her she was scratching her neck. But when Beth looked at her and said "Haley Ann whats wrong" Haley told her she was "just seeing how it was beeping." Haley told Beth she did not want to go to Charleston again unless it was just to stay in the hotel.
Beth said Haley is having nose bleeds and is up most every night. She is still going to school most days and trying to have a normal live. Haley wants to be like everyone so badly that she was not going to tell Beth about her heart. I guess she lived with it racing for so long that she thought she could do it again. I'll post more when Beth talks to the MD. Beth really thought that thing where going good for Haley for a change.
Please Pray for Haley's heart to heal and for Haley not to be afraid for what the future may bring.
Haley was not going to tell Beth. Beth was watching her do her homework and she would put her hand up to her neck and then back down to write several times. When Beth asked what she was doing she told her she was scratching her neck. But when Beth looked at her and said "Haley Ann whats wrong" Haley told her she was "just seeing how it was beeping." Haley told Beth she did not want to go to Charleston again unless it was just to stay in the hotel.
Beth said Haley is having nose bleeds and is up most every night. She is still going to school most days and trying to have a normal live. Haley wants to be like everyone so badly that she was not going to tell Beth about her heart. I guess she lived with it racing for so long that she thought she could do it again. I'll post more when Beth talks to the MD. Beth really thought that thing where going good for Haley for a change.
Please Pray for Haley's heart to heal and for Haley not to be afraid for what the future may bring.
Wednesday, March 19, 2008
Sorry It's been so long
Sorry it has been so long since I've posted. I talked with Beth yesterday and in the background I could hear Haley and Bri singing. Beth was taking them to school Haley was going on a field trip. I am so glad she is getting to enjoy thing that others take for granted. She still needs her rest and to stay calm at times but Beth said things seem to be as normal as they can be with Haley. Beth is working on Haley's education plans with the school. Nothing has happened yet, the meeting for Monday was canceled. We all just want Haley to get a better education than what she is getting. Maybe by next year she will be on track and have a game plan in place.
I'll update again soon.
I'll update again soon.
Sunday, March 9, 2008
Haley is so tired
Went by to see Haley and Bri on Friday night. Haley had gone to school everyday and had PT in the afternoon. When we went in Haley was sitting the the chair crying and Beth was trying to get her medicine together. I went and sat in the chair with her and started rocking her and we got her new dog to sit with us for about a minute. Beth brought us her medicine and a sippy cup. after her medicine Haley laid in my arms and went to sleep until I sneezed and woke her up.
Haley just can't take school everyday when she has been up at night with spasms and then has to do PT in the afternoon, it's just to much on her little body.
Please pray that the money comes in for the test that she needs, and for restful nights for the family.
Haley just can't take school everyday when she has been up at night with spasms and then has to do PT in the afternoon, it's just to much on her little body.
Please pray that the money comes in for the test that she needs, and for restful nights for the family.
Friday, March 7, 2008
Update on Haley
I spoke with Beth yesterday. Haley has been up every night this week. She is waking Brianna up instead of Beth because she think "mommy needs west". Beth has tried to explain that she needs to know what is going on at night with her and Brianna needs her sleep. Haley and Bri need separate bed rooms so bad.
The test that the MD wants to do has to be paid for up front $7000. The MD is still looking for organizations to help pay for the test. If they can get part of it paid for then he thinks he can get payments set up.
I am requesting prayer for Haley, Bri, and Beth to have 2 complete nights of sleep and the money for the test.
The test that the MD wants to do has to be paid for up front $7000. The MD is still looking for organizations to help pay for the test. If they can get part of it paid for then he thinks he can get payments set up.
I am requesting prayer for Haley, Bri, and Beth to have 2 complete nights of sleep and the money for the test.
Monday, March 3, 2008
Upcoming event
We are working on a golf tournament.
A poker run will be held July 12th in Pickens County. Detail coming soon.
For more information on either event please contact us.
A poker run will be held July 12th in Pickens County. Detail coming soon.
For more information on either event please contact us.
Sunday, March 2, 2008
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